Public Charity

NEUROFIBROMATOSIS MIDWEST

NEUROFIBROMATOSIS MIDWEST is a nonprofit organization categorized as Public Charity based in ST CHARLES, IL. Its most recent IRS filing (2024) reports revenue of $308K, expenses of $253K, total assets of $366K. Imperigo tracks 5 reported grant relationships connected to this organization totaling approximately $36K.

EIN: 222580173 ST CHARLES, IL Latest filing: 2024
Total Revenue$308K
Total Expenses$253K
Total Assets$366K
Grant Records5
Funding Total$36K
Filing Years2020–2024

Mission

TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.

Officers & Directors

TREASURER Andy Ringo
BOARD CHAIR Denise Dulceak
EXECUTIVE DI Diana Haberkamp
BOARD MEMBER Gail Mavrogenes
SECRETARY Lesli Wegner

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL SUPPORT
$25,166 3 grants
Unrestricted
$5,425 1 grant
2023 WALK4NF
$5,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $308K $253K $366K
2023 $241K $263K $294K
2022 $221K $218K $318K
2021 $210K $176K $351K
2020 $180K $215K $333K

Between 2020 and 2024, reported annual revenue grew from $180K to $308K (+71%), with total assets most recently reported at $366K.

Interactive year-over-year charts and full filing details available with membership.

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