Public Charity

CHARCOT-MARIE-TOOTH ASSOCIATION

CHARCOT-MARIE-TOOTH ASSOCIATION is a Public Charity headquartered in GLENOLDEN, PA. Financial data from the 2025 filing: $6.9M revenue, $7.4M expenses, $8.1M total assets. 107 publicly reported grants to this organization, totaling roughly $6.8M, appear in IRS filings.

EIN: 222480896 GLENOLDEN, PA Voluntary Health Associations & Medical Disciplines NTEE: G Latest filing: 2025
Total Revenue$6.9M
Total Expenses$7.4M
Total Assets$8.1M
Grant Records107
Funding Total$6.8M
Filing Years2021–2025

Mission

CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.

Where $100 goes at Charcot-Marie-Tooth Association

How Charcot-Marie-Tooth Association divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$89 Programs the work itself
$6 Management running the organization
$5 Fundraising raising the next dollar

Inside the $89 for programs

$66
Cmta awards research fellowships and grants for research on charcot-marie-tooth disease
74% of program spending
$23
Cmta organizes and conducts support groups, conferences, a camp for children ages 10-18 with cmt at 2 u.S
26% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

BOARD MEMBER Bernard Coulie
BOARD MEMBER Catherine Illingworth
BOARD MEMBER Craig Zeltsar
BOARD MEMBER Dan Chamby
BOARD MEMBER David Apple
BOARD MEMBER David Coldiron

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$5,336,526 59 grants
Health & Medicine
$955,448 23 grants
Research & Policy
$134,997 4 grants
Sports & Recreation
$87,500 4 grants
Education
$75,000 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $6.9M $7.4M $8.1M
2024 $5.8M $5.8M $9.5M
2023 $5.8M $6.3M $9.6M
2022 $10.4M $6.5M $9.9M
2021 $5.2M $4.8M $6.0M

Between 2021 and 2025, reported annual revenue grew from $5.2M to $6.9M (+33%), with total assets most recently reported at $8.1M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for CHARCOT-MARIE-TOOTH ASSOCIATION

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