Mission
THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.
Public Charity
ALPORT SYNDROME FOUNDATION INC
ALPORT SYNDROME FOUNDATION INC is a Public Charity headquartered in SCOTTSDALE, AZ. Financial data from the 2024 filing: $1.2M revenue, $1.0M expenses, $2.8M total assets. 32 publicly reported grants to this organization, totaling roughly $577K, appear in IRS filings.
EIN: 208237159
SCOTTSDALE, AZ
Patient & Family Support
NTEE: E86
Latest filing: 2024
Total Revenue$1.2M
Total Expenses$1.0M
Total Assets$2.8M
Grant Records32
Funding Total$577K
Filing Years2020–2024
Where $100 goes at Alport Syndrome Foundation Inc
How Alport Syndrome Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$87
Programs
the work itself
$9
Management
running the organization
$4
Fundraising
raising the next dollar
Inside the $87 for programs
$87
570 new members joined asf
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$129,750
HUMAN SERVICES
$26,500
GENERAL SUPPORT
$18,085
GENERAL SUPPORT
$18,085
GENERAL SUPPORT
$11,799
Showing up to 5 of 32 total records — full history available with membership.
Officers & Directors
DIRECTOR
Amy Rhodes
BOARD CHAIR
Andrew Kronenberg
TREASURER
Daniel Kilpatrick
DIRECTOR
December West
EXECUTIVE DIRECTOR
Lisa Bonebrake
DIRECTOR
Marty Dunleavy
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.2M | $1.0M | $2.8M |
| 2023 | $1.0M | $613K | $2.7M |
| 2022 | $991K | $499K | $2.3M |
| 2021 | $994K | $478K | $1.8M |
| 2020 | $739K | $438K | $1.3M |
Between 2020 and 2024, reported annual revenue grew from $739K to $1.2M (+62%), with total assets most recently reported at $2.8M.
Interactive year-over-year charts and full filing details available with membership.