Mission
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Public Charity
MYOTONIC DYSTROPHY FOUNDATION INC
Based in OAKLAND, CA, MYOTONIC DYSTROPHY FOUNDATION INC operates as a Public Charity. The organization reported $3.7M in revenue, $3.8M in expenses, $5.8M in total assets for fiscal year 2024. Imperigo tracks 93 reported grant relationships connected to this organization totaling approximately $4.5M.
EIN: 205014628
OAKLAND, CA
Latest filing: 2024
Total Revenue$3.7M
Total Expenses$3.8M
Total Assets$5.8M
Grant Records93
Funding Total$4.5M
Filing Years2020–2024
Sample Grants Received
UNRESTRICTED
$197,440
HEALTH
$138,100
$125,250
For grant recipient's exempt purposes
$69,650
Physical Health
$63,000
Showing up to 5 of 93 total records — full history available with membership.
Officers & Directors
CHIEF SCI. OFFICER
Andreas Rohrwasser
Director
Andrew Berglund
Director
Belen Esparis
Director
Charles Thornton
Director
David Berman
Treasurer
David Herbert
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $3.7M | $3.8M | $5.8M |
| 2023 | $2.4M | $3.8M | $5.5M |
| 2022 | $2.8M | $2.5M | $6.8M |
| 2021 | $2.4M | $1.5M | $5.8M |
| 2020 | $1.9M | $1.1M | $4.5M |
Between 2020 and 2024, reported annual revenue grew from $1.9M to $3.7M (+88%), with total assets most recently reported at $5.8M.
Interactive year-over-year charts and full filing details available with membership.