Mission
SEARCHING FOR BETTER UNDERSTANDING, TREATMENTS AND CURES FOR CHIARI MALFORMATION (CM), SYRINGOMYELIA (SM), NEUROPATHIC PAIN AND RELATED DISORDERS
Small Public Charity
CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
Based in WEST SENECA, NY, CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC operates as a Small Public Charity. The organization reported $37K in revenue, $69K in expenses, $274K in total assets for fiscal year 2025. Imperigo tracks 7 reported grant relationships connected to this organization totaling approximately $90K.
EIN: 201959386
WEST SENECA, NY
Neurology & Neuroscience Research
NTEE: H96
Latest filing: 2025
Total Revenue$37K
Total Expenses$69K
Total Assets$274K
Grant Records7
Funding Total$90K
Filing Years2020–2025
Where $100 goes at Chiari & Syringomyelia Research Foundation Inc
How Chiari & Syringomyelia Research Foundation Inc divides every $100 it spends, from its own Form 990-EZ filings, averaged across 8 years.
$84
Programs
the work itself
$16
Everything else
operations and overhead
Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.
Inside the $84 for programs
$42
Strive for improved surgical outcomes for chiari malformation and syringomyelia patients including much lower initial complication rates
$42
Understanding the biology, chemistry, and fluid dynamics of post traumatic syringomyelia to understand all forms of syringomyelia
Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
UNRESTRICTED
$5,975
UNRESTRICTED
$10,491
UNRESTRICTED
$17,127
Unrestricted
$18,910
Unrestricted
$18,235
Showing up to 5 of 7 total records — full history available with membership.
Officers & Directors
SECRETARY
Barbara Kane
TREASURER
Jeff Miller
VICE PRESIDE
Kevin Stringer
DIRECTOR
Laura Holena
PRESIDENT
Mark S Kane
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $37K | $69K | $274K |
| 2024 | $15K | $1K | $305K |
| 2023 | $13K | $58K | $292K |
| 2022 | $19K | $4K | $337K |
| 2020 | $52K | $1K | $331K |
Between 2020 and 2025, reported annual revenue declined from $52K to $37K (-27%), with total assets most recently reported at $274K.
Interactive year-over-year charts and full filing details available with membership.