Small Public Charity

CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION

CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION, of KANSAS CITY, MO, is a Small Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $106K in revenue, $67K in expenses, $205K in total assets. 10 publicly reported grants to this organization, totaling roughly $145K, appear in IRS filings.

EIN: 200391453 KANSAS CITY, MO Latest filing: 2025
Total Revenue$106K
Total Expenses$67K
Total Assets$205K
Grant Records10
Funding Total$145K
Filing Years2021–2025

Mission

THE CONGENITAL HEART DEFECTS FAMILIES ASSOCIATION IS A NOT-FOR-PROFIT 501(C)(3) CORPORATION WORKING TO BRING COMFORT AND SUPPORT TO AREA FAMILIES AFFECTED BY CONGENITAL HEART DEFECTS. SUPPORT GROUPS, DISTRIBUTION OF EDUCATIONAL LITERATURE, MEALS, CARE PACKAGES, AND COMFORT ITEMS FOR CHILDREN UNDERGOING CARDIAC PROCEDURES ARE THE ASSOCIATION'S MAIN FOCUS. ADDITIONALLY, THE ASSOCIATION FUNCTIONS TO RAISE MONEY AND AWARENESS TO PROMOTE CONGENITAL HEART DEFECTS RESEARCH THROUGH A VARIETY OF PROJECTS. ONE HUNDRED PERCENT VOLUNTEER RUN, THE CHD FAMILIES ASSOCIATION STRIVES TO MAXIMIZE INVESTMENT IN ITS WORK, NOT ITS OVERHEAD.

Officers & Directors

EXECUTIVE SECRETARY/TREASU Jonathan Rexin
CO-FOUNDER, DIRECTOR, LEGA Julie Thomas Esq
EXECUTIVE DIRECTOR Valerie Janke Rexin

Officer compensation and complete director data available with membership.

Top Grant Purposes

Scholarship
$80,797 3 grants
Unspecified
$37,396 4 grants
To support access to health care services
$10,000 1 grant
To Support Access To Health Care Services
$10,000 1 grant
To support children and youth with congenital heart defects.
$7,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $106K $67K $205K
2024 $69K $64K $162K
2023 $49K $63K $157K
2022 $59K $86K $170K
2021 $66K $25K $197K

Between 2021 and 2025, reported annual revenue grew from $66K to $106K (+62%), with total assets most recently reported at $205K.

Interactive year-over-year charts and full filing details available with membership.

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