Public Charity

CARDIO-FACIO-CUTANEOUS INTERNATIONAL

Based in St James, NY, CARDIO-FACIO-CUTANEOUS INTERNATIONAL operates as a Public Charity. The organization reported $207K in revenue, $401K in expenses, $345K in total assets for fiscal year 2024. Imperigo tracks 16 reported grant relationships connected to this organization totaling approximately $200K.

EIN: 161569293 St James, NY Education N.E.C. NTEE: B99 Latest filing: 2024
Total Revenue$207K
Total Expenses$401K
Total Assets$345K
Grant Records16
Funding Total$200K
Filing Years2019–2024

Mission

CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management webinars, and disseminate vital information - like peer-reviewed treatment guidelines - to diagnosed patients and caregivers. We improve access to experts in the management of CFC syndrome by hosting a biennial medical conference as well as at least one Rasopathy Clinic care event per year. Our patient families convene for support in multiple ways: through a Facebook support group, six to eight virtual support groups per month, and regional family meetups. Through our Medical Advisory Board, we strive to ensure that healthcare professionals have immediate access to the most current information, facilitatin

Where $100 goes at Cardio-Facio-Cutaneous International

How Cardio-Facio-Cutaneous International divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$39 Programs the work itself
$58 Management running the organization
$3 Fundraising raising the next dollar

Inside the $39 for programs

$39
We are a patient advocacy organization that supports families whose children have been diagnosed with Cardio-Facio-Cutaneous Syndrome (CFC syndrome)
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

President Alexis Nash
Treasurer Darin Iacobelli
Secretary Glenda Hux
Past President Jeff Kohler
Vice President Pilar Magoulas
Board Member Richard Boyce

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$144,099 13 grants
Health & Medicine
$10,000 1 grant
Unspecified
$45,527 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $207K $401K $345K
2023 $185K $196K $535K
2022 $108K $175K $551K
2020 $146K $150K $603K
2019 $242K $282K $607K

Between 2019 and 2024, reported annual revenue declined from $242K to $207K (-14%), with total assets most recently reported at $345K.

Interactive year-over-year charts and full filing details available with membership.

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