Public Charity

DIAMOND BLACKFAN ANEMIA FOUNDATION

DIAMOND BLACKFAN ANEMIA FOUNDATION is a nonprofit organization categorized as Public Charity based in WEST SENECA, NY. Its most recent IRS filing (2024) reports revenue of $499K, expenses of $397K, total assets of $1.8M. Imperigo tracks 33 reported grant relationships connected to this organization totaling approximately $699K.

EIN: 161459422 WEST SENECA, NY Latest filing: 2024
Total Revenue$499K
Total Expenses$397K
Total Assets$1.8M
Grant Records33
Funding Total$699K
Filing Years2020–2024

Mission

THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE.

Officers & Directors

DIRECTOR Anita Shier Bruton
DIRECTOR Anthony Marchese
DIRECTOR Cara Breidster
SECRETARY Carol Mancuso
DIRECTOR Charles Brown
EXECUTIVE DIRECTOR Dawn Baumgardner

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$192,036 4 grants
UNRESTRICTED
$158,814 3 grants
For grant recipient's exempt purposes
$138,863 8 grants
GENERAL SUPPORT
$83,331 7 grants
HEALTH
$64,650 5 grants

Financial Trends

Year Revenue Expenses Assets
2024 $499K $397K $1.8M
2023 $664K $720K $1.6M
2022 $384K $152K $1.7M
2020 $432K $229K $1.2M

Between 2020 and 2024, reported annual revenue grew from $432K to $499K (+15%), with total assets most recently reported at $1.8M.

Interactive year-over-year charts and full filing details available with membership.

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