Public Charity

DIAMOND BLACKFAN ANEMIA FOUNDATION

DIAMOND BLACKFAN ANEMIA FOUNDATION is a nonprofit organization categorized as Public Charity based in WEST SENECA, NY. Its most recent IRS filing (2025) reports revenue of $604K, expenses of $475K, total assets of $1.9M. Imperigo tracks 34 reported grant relationships connected to this organization totaling approximately $719K.

EIN: 161459422 WEST SENECA, NY Fund Raising & Fund Distribution NTEE: G12 Latest filing: 2025
Total Revenue$604K
Total Expenses$475K
Total Assets$1.9M
Grant Records34
Funding Total$719K
Filing Years2020–2025

Mission

THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE.

Where $100 goes at Diamond Blackfan Anemia Foundation

How Diamond Blackfan Anemia Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$93 Programs the work itself
$6 Management running the organization
$1 Fundraising raising the next dollar

Inside the $93 for programs

$51
(Research) support of peer-reviewed research projects investigating the cause and potential treatment options and a cure for diamond blackfan anemia
55% of program spending
$36
(Dba icc) a conference organized to provide a venue for the exchange of ideas and foster new collaborations among dba clinicians and scientists, document results from ongoing clinical…
38% of program spending
$4
(Camp sunshine) organization and operation of an educational, family oriented, support meeting at camp sunshine, bringing together diamond blackfan anemia patients, families, clinicians, and researchers
5% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Anita Shier Bruton
DIRECTOR Anthony Marchese
DIRECTOR Cara Breidster
SECRETARY Carol Mancuso
DIRECTOR Charles Brown
EXECUTIVE DIRECTOR Dawn Baumgardner

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$645,907 28 grants
Health & Medicine
$64,650 5 grants
Unspecified
$8,173 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $604K $475K $1.9M
2024 $499K $397K $1.8M
2023 $664K $720K $1.6M
2022 $384K $152K $1.7M
2020 $432K $229K $1.2M

Between 2020 and 2025, reported annual revenue grew from $432K to $604K (+40%), with total assets most recently reported at $1.9M.

Interactive year-over-year charts and full filing details available with membership.

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