Public Charity

DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION

DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $1.6M in revenue, $2.0M in expenses, $1.1M in total assets. 61 publicly reported grants to this organization, totaling roughly $1.8M, appear in IRS filings.

EIN: 136145280 NEW YORK, NY Latest filing: 2024
Total Revenue$1.6M
Total Expenses$2.0M
Total Assets$1.1M
Grant Records61
Funding Total$1.8M
Filing Years2019–2024

Mission

THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.

Officers & Directors

Treasurer Allan Cohen
Director Brian Stillman
Director Daniel Landau
Vice President Edward Baranoff
President Faye Ginsburg
Director Gerald Adler

Officer compensation and complete director data available with membership.

Top Grant Purposes

For grant recipient's exempt purposes
$584,777 9 grants
HEALTH
$349,834 14 grants
GENERAL SUPPORT
$255,653 6 grants
MEDICAL / PUBLIC SERVICES
$174,550 3 grants
MEDICAL
$115,300 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.6M $2.0M $1.1M
2023 $1.2M $1.9M $1.5M
2022 $1.6M $1.8M $2.2M
2020 $1.8M $1.8M $1.8M
2019 $1.4M $1.9M $1.9M

Between 2019 and 2024, reported annual revenue grew from $1.4M to $1.6M (+9%), with total assets most recently reported at $1.1M.

Interactive year-over-year charts and full filing details available with membership.

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