Mission
THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.
Public Charity
DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION
DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $1.6M in revenue, $2.0M in expenses, $1.1M in total assets. 64 publicly reported grants to this organization, totaling roughly $1.8M, appear in IRS filings.
EIN: 136145280
NEW YORK, NY
Nerve, Muscle & Bone Diseases
NTEE: G50
Latest filing: 2024
Total Revenue$1.6M
Total Expenses$2.0M
Total Assets$1.1M
Grant Records64
Funding Total$1.8M
Filing Years2019–2024
Where $100 goes at Dysautonomia Foundation Inc DBA Familial Dysautonomia Foundation
How Dysautonomia Foundation Inc DBA Familial Dysautonomia Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$86
Programs
the work itself
$11
Management
running the organization
$3
Fundraising
raising the next dollar
Inside the $86 for programs
$86
The dysautonomia foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$115,025
HEALTH
$65,155
MEDICAL / PUBLIC SERVICES
$62,800
For grant recipient's exempt purposes
$59,230
GENERAL SUPPORT
$58,108
Showing up to 5 of 64 total records — full history available with membership.
Officers & Directors
Treasurer
Allan Cohen
Director
Brian Stillman
Director
Daniel Landau
Vice President
Edward Baranoff
President
Faye Ginsburg
Director
Gerald Adler
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1.6M | $2.0M | $1.1M |
| 2023 | $1.2M | $1.9M | $1.5M |
| 2022 | $1.6M | $1.8M | $2.2M |
| 2020 | $1.8M | $1.8M | $1.8M |
| 2019 | $1.4M | $1.9M | $1.9M |
Between 2019 and 2024, reported annual revenue grew from $1.4M to $1.6M (+9%), with total assets most recently reported at $1.1M.
Interactive year-over-year charts and full filing details available with membership.