Public Charity

Moebius Syndrome Foundation

Moebius Syndrome Foundation is a Public Charity headquartered in Denver, CO. Financial data from the 2024 filing: $338K revenue, $283K expenses, $2.0M total assets. IRS filings disclose 25 grants awarded by this foundation, totaling roughly $593K.

EIN: 133753992 Denver, CO Public Foundations NTEE: T30 Latest filing: 2024
Total Revenue$338K
Total Expenses$283K
Total Assets$2.0M
Grants Given25
Grant Total$593K
Filing Years2020–2024

Mission

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Sample Grants Given

Stillwater, OK · 2024
Scholarship
$3,000
University of North Florida
Jacksonville, FL · 2024
Scholarship
$3,000
University of South Florida
Tampa, FL · 2024
Scholarship
$3,000
York, PA · 2024
Scholarship
$3,000
Bartlesville, OK · 2024
Scholarship
$3,000

Showing up to 5 of 25 total records — full history available with membership.

Officers & Directors

Board Member Austin Halls
Board Member Bryn Webb Md
Treasurer Destiny Bachman
Past President Jacob Licht
Executive Director Jennifer Whitman
Secretary Jon Fisher

Officer compensation and complete director data available with membership.

Top Grant Purposes

FUNDS FOR RESEARCH
$264,344 3 grants
TO PROVIDE FUNDS FOR RESEARCH TO DETERMINE THE GENETIC CAUSE OF MOEBIUS SYNDROME.
$205,000 3 grants
For scientific and/or clinical research on Moebius syndrome
$70,000 1 grant
Scholarship
$54,000 18 grants

Financial Trends

Year Revenue Expenses Assets
2024 $338K $283K $2.0M
2023 $458K $599K $1.8M
2022 $358K $520K $1.9M
2021 $1.0M $184K $2.4M
2020 $104K $600K $1.6M

Between 2020 and 2024, reported annual revenue grew from $104K to $338K (+224%), with total assets most recently reported at $2.0M.

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in AR, CA, CT, DC, FL, IN, and 4 other states.

ARCACTDCFLINMAMDMNMS

Full geographic grant map with state-by-state breakdown available with membership.

See the full picture for Moebius Syndrome Foundation

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