Public Charity

Moebius Syndrome Foundation

Moebius Syndrome Foundation is a Public Charity headquartered in Denver, CO. Financial data from the 2024 filing: $338K revenue, $283K expenses, $2.0M total assets. 9 publicly reported grants to this organization, totaling roughly $97K, appear in IRS filings.

EIN: 133753992 Denver, CO Latest filing: 2024
Total Revenue$338K
Total Expenses$283K
Total Assets$2.0M
Grant Records9
Funding Total$97K
Filing Years2020–2024

Mission

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.

Officers & Directors

Board Member Austin Halls
Board Member Bryn Webb Md
Treasurer Destiny Bachman
Past President Jacob Licht
Executive Director Jennifer Whitman
Secretary Jon Fisher

Officer compensation and complete director data available with membership.

Top Grant Purposes

UNRESTRICTED
$32,889 3 grants
Unrestricted
$28,073 2 grants
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
$12,700 1 grant
SUPPORT NON-PROFIT PHILANTHROPIC ORG
$12,000 1 grant
HEALTH & HUMAN SERVICES
$5,500 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $338K $283K $2.0M
2023 $458K $599K $1.8M
2022 $358K $520K $1.9M
2021 $1.0M $184K $2.4M
2020 $104K $600K $1.6M

Between 2020 and 2024, reported annual revenue grew from $104K to $338K (+224%), with total assets most recently reported at $2.0M.

Interactive year-over-year charts and full filing details available with membership.

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