Mission
TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY HUNTINGTON'S DISEASE BY PROVIDING SUPPORT, DRIVING ADVOCACY, AND ACCELERATING RESEARCH.
Public Charity
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC is a nonprofit organization categorized as Public Charity based in NEW YORK, NY. Its most recent IRS filing (2025) reports revenue of $11.2M, expenses of $9.4M, total assets of $17.9M. Imperigo tracks 151 reported grant relationships connected to this organization totaling approximately $8.1M.
EIN: 133349872
NEW YORK, NY
Latest filing: 2025
Total Revenue$11.2M
Total Expenses$9.4M
Total Assets$17.9M
Grant Records151
Funding Total$8.1M
Filing Years2021–2025
Sample Grants Received
TO SUPPORT RESEARCH FOR HUNTINGTON'S DISEASE
$7,500
For grant recipient's exempt purposes
$383,839
GENERAL SUPPORT
$148,165
GENERAL SUPPORT
$95,209
$56,225
Showing up to 5 of 151 total records — full history available with membership.
Officers & Directors
TRUSTEE
Amber Southwell Phd
CHIEF EXECUTIVE OFFICER
Amy Gray
CHAIR ELECT
Angela Allen
CHIEF MISSION OFFICER
Arik Johnson
TRUSTEE
Beth Hoffman
TREASURER
Christopher Decesaris
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $11.2M | $9.4M | $17.9M |
| 2024 | $10.2M | $11.4M | $17.3M |
| 2023 | $9.8M | $11.2M | $18.1M |
| 2022 | $10.7M | $9.4M | $17.4M |
| 2021 | $12.2M | $7.9M | $15.8M |
Between 2021 and 2025, reported annual revenue declined from $12.2M to $11.2M (-8%), with total assets most recently reported at $17.9M.
Interactive year-over-year charts and full filing details available with membership.