Mission
HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGAIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Public Charity
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC is a nonprofit organization categorized as Public Charity based in NEW YORK, NY. Its most recent IRS filing (2024) reports revenue of $10.2M, expenses of $11.4M, total assets of $17.3M. Imperigo tracks 148 reported grant relationships connected to this organization totaling approximately $8.0M.
EIN: 133349872
NEW YORK, NY
Latest filing: 2024
Total Revenue$10.2M
Total Expenses$11.4M
Total Assets$17.3M
Grant Records148
Funding Total$8.0M
Filing Years2020–2024
Sample Grants Received
For grant recipient's exempt purposes
$383,839
GENERAL SUPPORT
$148,165
GENERAL SUPPORT
$95,209
$56,225
GENERAL OPERATING SUPPORT
$50,000
Showing up to 5 of 148 total records — full history available with membership.
Officers & Directors
TRUSTEE
Amber Southwell Phd
TREASURER
Angela Allen
CHIEF MISSION OFFICER
Arik Johnson
TRUSTEE
Beth Hoffman
TRUSTEE
Christopher Decesaris
REGIONAL DEVELOPMENT DIRECTOR
Deborah Boyd
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $10.2M | $11.4M | $17.3M |
| 2023 | $9.8M | $11.2M | $18.1M |
| 2022 | $10.7M | $9.4M | $17.4M |
| 2021 | $12.2M | $7.9M | $15.8M |
| 2020 | $8.6M | $8.2M | $12.2M |
Between 2020 and 2024, reported annual revenue grew from $8.6M to $10.2M (+18%), with total assets most recently reported at $17.3M.
Interactive year-over-year charts and full filing details available with membership.