Public Charity

GALACTOSEMIA FOUNDATION

GALACTOSEMIA FOUNDATION is a nonprofit organization categorized as Public Charity based in ALBANY, NY. Its most recent IRS filing (2024) reports revenue of $386K, expenses of $351K, total assets of $819K. Imperigo tracks 16 reported grant relationships connected to this organization totaling approximately $195K.

EIN: 133349708 ALBANY, NY Support N.E.C. NTEE: F19 Latest filing: 2024
Total Revenue$386K
Total Expenses$351K
Total Assets$819K
Grant Records16
Funding Total$195K
Filing Years2019–2024

Mission

TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.

Where $100 goes at Galactosemia Foundation

How Galactosemia Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$96 Programs the work itself
$3 Management running the organization
$1 Fundraising raising the next dollar

Inside the $96 for programs

$61
Provided support to individuals with galactosemia and spread awareness by publishing two newsletters worldwide, setting up a nationwide website discussion forum, through telephone support, and a biennial conference
64% of program spending
$26
Funding research grants to medical professional/research hospitals
27% of program spending
$9
Hosted a bi-annual conference for those suffering for galactosemia as well as medical professionals and researchers
9% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

VICE PRESIDENT Brittany Cudzilo
MEMBER AT LARGE Gillain Sapia
TREASURER Jessica Taylor
COMMUNICATIONS LEAD Jodi Solari
MEMBER AT LARGE Keith Topper
MEMBER AT LARGE Kelly Foley

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$188,733 15 grants
Health & Medicine
$6,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $386K $351K $819K
2023 $477K $258K $782K
2022 $377K $301K $564K
2020 $229K $88K $441K
2019 $116K $123K $300K

Between 2019 and 2024, reported annual revenue grew from $116K to $386K (+232%), with total assets most recently reported at $819K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for GALACTOSEMIA FOUNDATION

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