Mission
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Public Charity
NATIONAL DOWN SYNDROME SOCIETY
NATIONAL DOWN SYNDROME SOCIETY is a Public Charity headquartered in WASHINGTON, DC. Financial data from the 2025 filing: $4.7M revenue, $5.7M expenses, $12.4M total assets. 100 publicly reported grants to this organization, totaling roughly $3.1M, appear in IRS filings.
EIN: 132992567
WASHINGTON, DC
Latest filing: 2025
Total Revenue$4.7M
Total Expenses$5.7M
Total Assets$12.4M
Grant Records100
Funding Total$3.1M
Filing Years2021–2025
Sample Grants Received
For grant recipient's exempt purposes
$117,200
GENERAL SUPPORT
$98,514
GENERAL SUPPORT
$82,030
$40,300
HEALTH
$39,808
Showing up to 5 of 100 total records — full history available with membership.
Officers & Directors
Director
Candace Whiting
Chairman
Carlo P Frappolli
Director
Ciara Siegel
Director
C Mitch Taylor
Director
Courtney Gaines
Director
Debbie Morris
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $4.7M | $5.7M | $12.4M |
| 2024 | $4.0M | $5.3M | $13.0M |
| 2023 | $3.4M | $4.2M | $13.5M |
| 2022 | $3.7M | $3.4M | $13.1M |
| 2021 | $3.5M | $2.7M | $15.3M |
Between 2021 and 2025, reported annual revenue grew from $3.5M to $4.7M (+36%), with total assets most recently reported at $12.4M.
Interactive year-over-year charts and full filing details available with membership.