Mission
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Public Charity
NATIONAL DOWN SYNDROME SOCIETY
NATIONAL DOWN SYNDROME SOCIETY is a Public Charity headquartered in WASHINGTON, DC. Financial data from the 2025 filing: $4.7M revenue, $5.7M expenses, $12.4M total assets. 107 publicly reported grants to this organization, totaling roughly $5.0M, appear in IRS filings.
EIN: 132992567
WASHINGTON, DC
Latest filing: 2025
Total Revenue$4.7M
Total Expenses$5.7M
Total Assets$12.4M
Grant Records107
Funding Total$5.0M
Filing Years2021–2025
Where $100 goes at National Down Syndrome Society
How National Down Syndrome Society divides every $100 it spends, from its own Form 990 filings, averaged across 6 years.
$78
Programs
the work itself
$10
Management
running the organization
$12
Fundraising
raising the next dollar
Inside the $78 for programs
$30
Community engagement
$18
Resources and support
$15
Advocacy and public policy
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$29,770
GENERAL SUPPORT
$28,036
GENERAL SUPPORT
$14,089
MEDICAL
$10,000
HUMAN SERVICES
$1,636,509
Showing up to 5 of 107 total records — full history available with membership.
Officers & Directors
Director
Candace Whiting
Chairman
Carlo P Frappolli
Director
Ciara Siegel
Director
C Mitch Taylor
Director
Courtney Gaines
Director
Debbie Morris
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $4.7M | $5.7M | $12.4M |
| 2024 | $4.0M | $5.3M | $13.0M |
| 2023 | $3.4M | $4.2M | $13.5M |
| 2022 | $3.7M | $3.4M | $13.1M |
| 2021 | $3.5M | $2.7M | $15.3M |
Between 2021 and 2025, reported annual revenue grew from $3.5M to $4.7M (+36%), with total assets most recently reported at $12.4M.
Interactive year-over-year charts and full filing details available with membership.