Public Charity

CHILDREN'S TUMOR FOUNDATION

CHILDREN'S TUMOR FOUNDATION, of NEW YORK, NY, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $19.7M in revenue, $19.0M in expenses, $30.7M in total assets. 220 publicly reported grants to this organization, totaling roughly $28.6M, appear in IRS filings.

EIN: 132298956 NEW YORK, NY Nerve, Muscle & Bone Diseases Research NTEE: H50 Latest filing: 2024
Total Revenue$19.7M
Total Expenses$19.0M
Total Assets$30.7M
Grant Records220
Funding Total$28.6M
Filing Years2019–2024

Mission

OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.

Where $100 goes at Children's Tumor Foundation

How Children's Tumor Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$84 Programs the work itself
$8 Management running the organization
$8 Fundraising raising the next dollar

Inside the $84 for programs

$58
Research
69% of program spending
$26
Public education and patient support
31% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Sample Grants Received

2025
GENERAL SUPPORT
$85,496
2025
Bring treatments to patients as we work toward a cure. Research, expand knowledge & advance care for the NF community.
$5,691
$5,500
NFX
2024
SUPPORT FOR NEUROFIBROMATOSIS RESEARCH
$1,500,000

Showing up to 5 of 220 total records — full history available with membership.

Officers & Directors

VP DEV. PTP AND FIELD BASED EVENTS Amy Boulas
PRESIDENT Annette Bakker
VICE PRESIDENT OF DEV. Barbara Gallagher
CHIEF MEDICAL OFFICER Brigid Garelik
BOARD MEMBER (OUTGOING) Carol Kalagher
BOARD MEMBER Daniel Altman

Officer compensation and complete director data available with membership.

Top Grant Purposes

Research & Policy
$13,618,927 26 grants
General Support
$11,689,439 137 grants
Health & Medicine
$2,801,258 31 grants
Education
$226,768 6 grants
Human & Social Services
$72,200 5 grants

Financial Trends

Year Revenue Expenses Assets
2024 $19.7M $19.0M $30.7M
2023 $16.4M $18.8M $30.1M
2022 $17.0M $15.8M $32.1M
2020 $12.8M $10.4M $23.1M
2019 $17.9M $11.3M $19.2M

Between 2019 and 2024, reported annual revenue grew from $17.9M to $19.7M (+10%), with total assets most recently reported at $30.7M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for CHILDREN'S TUMOR FOUNDATION

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