Public Charity

HERMANSKY PUDLAK SYNDROME NETWORK

HERMANSKY PUDLAK SYNDROME NETWORK is a nonprofit organization categorized as Public Charity based in OYSTER BAY COVE, NY. Its most recent IRS filing (2025) reports revenue of $425K, expenses of $447K, total assets of $270K. Imperigo tracks 13 reported grant relationships connected to this organization totaling approximately $733K.

EIN: 113283268 OYSTER BAY COVE, NY Latest filing: 2025
Total Revenue$425K
Total Expenses$447K
Total Assets$270K
Grant Records13
Funding Total$733K
Filing Years2021–2025

Mission

THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.

Sample Grants Received

2023
Provide a safe place with activities for kids with HPS while parent attend educational sessions.
$17,350
$12,500
$150,000
$8,651
2022
GENERAL SUPPORT
$6,460

Showing up to 5 of 13 total records — full history available with membership.

Officers & Directors

BOARD MEMBER Becky Nieves
PRESIDENT Donna Appell
VP/SEC Heather Kirkwood
BOARD MEMBER Nancy Lee
TREASURER Richard Appell

Officer compensation and complete director data available with membership.

Top Grant Purposes

Human Services
$615,000 2 grants
Unrestricted
$55,515 3 grants
Provide a safe place with activities for kids with HPS while parent attend educational sessions.
$17,350 1 grant
GENERAL SUPPORT
$15,111 2 grants
HUMAN SERVICES
$12,500 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $425K $447K $270K
2024 $323K $459K $283K
2023 $293K $425K $419K
2022 $426K $527K $560K
2021 $632K $385K $649K

Between 2021 and 2025, reported annual revenue declined from $632K to $425K (-33%), with total assets most recently reported at $270K.

Interactive year-over-year charts and full filing details available with membership.

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