Public Charity

The Neuromuscular Disease Foundation

Based in Beverly Hills, CA, The Neuromuscular Disease Foundation operates as a Public Charity. The organization reported $65K in revenue, $352K in expenses, $660K in total assets for fiscal year 2024. Imperigo tracks 5 reported grant relationships connected to this organization totaling approximately $163K.

EIN: 061789643 Beverly Hills, CA Latest filing: 2024
Total Revenue$65K
Total Expenses$352K
Total Assets$660K
Grant Records5
Funding Total$163K
Filing Years2020–2024

Mission

THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure.

Officers & Directors

Director Amy Curran
CEO Coleman Kennedy
Director David Dahl
CFO David Golden
Director David Haverim
Director Isabella Tyszler

Officer compensation and complete director data available with membership.

Top Grant Purposes

GENERAL HEALTH & FIRST AID GRANT
$100,000 1 grant
Diseases, Disorders & Medical Disciplines
$50,000 1 grant
GENERAL SUPPORT
$7,134 2 grants
For grant recipient's exempt purposes
$6,300 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $65K $352K $660K
2023 $561K $500K $949K
2022 $443K $1.0M $886K
2021 $439K $1.2M $1.5M
2020 $439K $1.4M $2.2M

Between 2020 and 2024, reported annual revenue declined from $439K to $65K (-85%), with total assets most recently reported at $660K.

Interactive year-over-year charts and full filing details available with membership.

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