Public Charity

CORNELIA DE LANGE SYNDROME FOUNDATION

Based in AVON, CT, CORNELIA DE LANGE SYNDROME FOUNDATION operates as a Public Charity. The organization reported $1.1M in revenue, $1.1M in expenses, $3.4M in total assets for fiscal year 2024. Imperigo tracks 55 reported grant relationships connected to this organization totaling approximately $1.4M.

EIN: 061057497 AVON, CT Latest filing: 2024
Total Revenue$1.1M
Total Expenses$1.1M
Total Assets$3.4M
Grant Records55
Funding Total$1.4M
Filing Years2019–2024

Mission

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Officers & Directors

MD Director Antonie Kline Md
Director Arthur Lander
Treasurer Eric Johnson
Director Mary Ann Ehlert
Vice President Mike Feehan
Executive Dir. Morrisette Royster

Officer compensation and complete director data available with membership.

Top Grant Purposes

HEALTH
$855,848 15 grants
GENERAL SUPPORT
$207,643 8 grants
For grant recipient's exempt purposes
$81,635 7 grants
MEDICAL
$78,250 10 grants
MEDICAL / PUBLIC SERVICES
$58,250 4 grants

Financial Trends

Year Revenue Expenses Assets
2024 $1.1M $1.1M $3.4M
2023 $946K $993K $3.3M
2022 $1.1M $1.1M $2.9M
2020 $1.0M $933K $2.8M
2019 $2.3M $955K $2.4M

Between 2019 and 2024, reported annual revenue declined from $2.3M to $1.1M (-53%), with total assets most recently reported at $3.4M.

Interactive year-over-year charts and full filing details available with membership.

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