Public Charity

SPASTIC PARAPLEGIA FOUNDATION INC

SPASTIC PARAPLEGIA FOUNDATION INC is a Public Charity headquartered in O Fallon, MO. Financial data from the 2025 filing: $1.7M revenue, $1.4M expenses, $3.6M total assets. 42 publicly reported grants to this organization, totaling roughly $2.8M, appear in IRS filings.

EIN: 043594491 O Fallon, MO Brain Disorders NTEE: G48 Latest filing: 2025
Total Revenue$1.7M
Total Expenses$1.4M
Total Assets$3.6M
Grant Records42
Funding Total$2.8M
Filing Years2020–2025

Mission

1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones

Where $100 goes at Spastic Paraplegia Foundation Inc

How Spastic Paraplegia Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$94 Programs the work itself
$4 Management running the organization
$2 Fundraising raising the next dollar

Inside the $94 for programs

$83
Scientific research grants are awarded to academic researchers in universities both in the United States and internationally
88% of program spending
$9
The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers
10% of program spending
$1
Software to facilitate advocacy of rare diseases, grant accounting, Sponsorships/Grants to organizations with complementary services to Spastic Paraplegia Foundation, Inc
1% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Becki Cochran
Director Carina Thurgood
Director Dina Landphair
Director Frank Davis
President/Director Greg Pruitt
Secretary/Director Hank Chiuppi

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,739,986 34 grants
Health & Medicine
$42,680 4 grants
Unspecified
$66,292 3 grants

Financial Trends

Year Revenue Expenses Assets
2025 $1.7M $1.4M $3.6M
2024 $1.7M $900K $3.1M
2023 $1.3M $1.9M $3.3M
2022 $1.2M $748K $2.9M
2020 $929K $992K $2.3M

Between 2020 and 2025, reported annual revenue grew from $929K to $1.7M (+88%), with total assets most recently reported at $3.6M.

Interactive year-over-year charts and full filing details available with membership.

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