Mission
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.
Public Charity
CHOROIDEREMIA RESEARCH FOUNDATION INC
Based in SPRINGFIELD, MA, CHOROIDEREMIA RESEARCH FOUNDATION INC operates as a Public Charity. The organization reported $965K in revenue, $819K in expenses, $957K in total assets for fiscal year 2025. Imperigo tracks 26 reported grant relationships connected to this organization totaling approximately $429K.
EIN: 043511754
SPRINGFIELD, MA
Research Institutes & Public Policy Analysis
NTEE: U05
Latest filing: 2025
Total Revenue$965K
Total Expenses$819K
Total Assets$957K
Grant Records26
Funding Total$429K
Filing Years2021–2025
Where $100 goes at Choroideremia Research Foundation Inc
How Choroideremia Research Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$75
Programs
the work itself
$12
Management
running the organization
$13
Fundraising
raising the next dollar
Inside the $75 for programs
$75
To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$104,881
For grant recipient's exempt purposes
$34,850
GENERAL SUPPORT
$10,848
GENERAL SUPPORT
$10,700
PUBLIC, SOCIETAL BENEFIT
$7,850
Showing up to 5 of 26 total records — full history available with membership.
Officers & Directors
Director
Aurelie Harp
DIRECTOR
Bob Hillier
Director
Brian Counter
Secretary
Brian Mayer
Director
Dr John-Ross Rizzo
Director
Jason Mckinney
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $965K | $819K | $957K |
| 2024 | $699K | $689K | $811K |
| 2023 | $561K | $746K | $801K |
| 2022 | $665K | $585K | $986K |
| 2021 | $672K | $574K | $906K |
Between 2021 and 2025, reported annual revenue grew from $672K to $965K (+43%), with total assets most recently reported at $957K.
Interactive year-over-year charts and full filing details available with membership.