Mission
TO CREATE CONNECTED STANDARDS ACROSS THE STUDY INFORMATION LIFECYCLE TO ENABLE ACCESSIBLE, INTEROPERABLE, AND REUABLE DATA FOR MORE MEANINGFUL AND EFFECTIVE RESEARCH.
Public Charity
CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC
Based in AUSTIN, TX, CLINICAL DATA INTERCHANGE STANDARDS CONSORTIUM INC operates as a Public Charity. The organization reported $8.9M in revenue, $8.5M in expenses, $4.0M in total assets for fiscal year 2025. Imperigo tracks 4 reported grant relationships connected to this organization totaling approximately $832K.
EIN: 043503931
AUSTIN, TX
Research Institutes & Public Policy Analysis
NTEE: E05
Latest filing: 2025
Total Revenue$8.9M
Total Expenses$8.5M
Total Assets$4.0M
Grant Records4
Funding Total$832K
Filing Years2020–2025
Where $100 goes at Clinical Data Interchange Standards Consortium Inc
How Clinical Data Interchange Standards Consortium Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$73
Programs
the work itself
$22
Management
running the organization
$5
Fundraising
raising the next dollar
Inside the $73 for programs
$56
In 2024, cdisc introduced a strategic roadmap to expand and enable standards driven automation across the end-to-end study information lifecycle from study design through results
$10
Events
$7
Education
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
DATA STANDARDS RESEARCH
$402,000
DEVELOP CLINICAL DATA STANDARDS
$137,750
DEVELOP CLINICAL DATA STANDARDS
$263,981
DEVELOP CLINICAL DATA STANDARDS
$28,615
Showing up to 5 of 4 total records — full history available with membership.
Officers & Directors
ED OF STRATEGY AND INNOVATION
Anthony Chow
HEAD OF STANDARDS DEVELOPMENT
Bess Leroy Nieto
CHAIR
Brooke Hinkson
DIRECTOR
Catherine Chronaki
HEAD OF DATA SCIENCE OPERATIONS
Charles Shadle
PRESIDENT & CEO
Chris Decker
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $8.9M | $8.5M | $4.0M |
| 2024 | $9.2M | $9.5M | $3.2M |
| 2023 | $9.3M | $11.2M | $4.0M |
| 2022 | $8.1M | $9.6M | $5.1M |
| 2020 | $7.0M | $7.6M | $6.5M |
Between 2020 and 2025, reported annual revenue grew from $7.0M to $8.9M (+28%), with total assets most recently reported at $4.0M.
Interactive year-over-year charts and full filing details available with membership.