Public Charity

CYSTINOSIS RESEARCH NETWORK INC

CYSTINOSIS RESEARCH NETWORK INC is a nonprofit organization categorized as Public Charity based in LAKE FOREST, IL. Its most recent IRS filing (2024) reports revenue of $646K, expenses of $357K, total assets of $605K. Imperigo tracks 9 reported grant relationships connected to this organization totaling approximately $112K.

EIN: 043323789 LAKE FOREST, IL Latest filing: 2024
Total Revenue$646K
Total Expenses$357K
Total Assets$605K
Grant Records9
Funding Total$112K
Filing Years2019–2024

Mission

THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS.

Officers & Directors

DIRECTOR Carol Hughes
VP FAMILY SU Chelsea Meschke
EXECUTIVE DI Clair Johnstone
DIRECTOR Gail Potts
DIRECTOR Heather Fields Rothrock
DIRECTOR Herberth Sigler

Officer compensation and complete director data available with membership.

Top Grant Purposes

Unrestricted
$57,250 3 grants
GENERAL SUPPORT
$28,590 3 grants
GENERAL USE
$14,250 2 grants
GENERAL USE AND/OR SPECIAL FUND/PROJECT
$11,950 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $646K $357K $605K
2023 $511K $691K $298K
2022 $346K $537K $505K
2020 $527K $201K $540K
2019 $409K $569K $216K

Between 2019 and 2024, reported annual revenue grew from $409K to $646K (+58%), with total assets most recently reported at $605K.

Interactive year-over-year charts and full filing details available with membership.

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