Mission
THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS.
Public Charity
CYSTINOSIS RESEARCH NETWORK INC
CYSTINOSIS RESEARCH NETWORK INC is a nonprofit organization categorized as Public Charity based in LAKE FOREST, IL. Its most recent IRS filing (2024) reports revenue of $646K, expenses of $357K, total assets of $605K. Imperigo tracks 9 reported grant relationships connected to this organization totaling approximately $112K.
EIN: 043323789
LAKE FOREST, IL
Education N.E.C.
NTEE: B99
Latest filing: 2024
Total Revenue$646K
Total Expenses$357K
Total Assets$605K
Grant Records9
Funding Total$112K
Filing Years2019–2024
Where $100 goes at Cystinosis Research Network Inc
How Cystinosis Research Network Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$86
Programs
the work itself
$11
Management
running the organization
$3
Fundraising
raising the next dollar
Inside the $86 for programs
$60
The organization raises awareness and reinforces strong relationships through representation at national medical conferences, affiliation with other organizations, publication of periodic newsletters and awards or educational scholarships to…
$18
The organization establishes and funds fellowships and research grants focusing on clinical and research training in cystinosis
$8
The organization provides information and opportunities to network for individuals with cystinosis and their families through participation in a biennial conference on cystinosis
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL SUPPORT
$9,045
GENERAL SUPPORT
$5,145
GENERAL SUPPORT
$14,400
Unrestricted
$37,792
GENERAL USE AND/OR SPECIAL FUND/PROJECT
$11,950
Showing up to 5 of 9 total records — full history available with membership.
Officers & Directors
DIRECTOR
Carol Hughes
VP FAMILY SU
Chelsea Meschke
EXECUTIVE DI
Clair Johnstone
DIRECTOR
Gail Potts
DIRECTOR
Heather Fields Rothrock
DIRECTOR
Herberth Sigler
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $646K | $357K | $605K |
| 2023 | $511K | $691K | $298K |
| 2022 | $346K | $537K | $505K |
| 2020 | $527K | $201K | $540K |
| 2019 | $409K | $569K | $216K |
Between 2019 and 2024, reported annual revenue grew from $409K to $646K (+58%), with total assets most recently reported at $605K.
Interactive year-over-year charts and full filing details available with membership.