Mission
FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.
Public Charity
FRAXA Research Foundation Inc
FRAXA Research Foundation Inc is a Public Charity headquartered in Newburyport, MA. Financial data from the 2025 filing: $2.4M revenue, $2.0M expenses, $5.5M total assets. 74 publicly reported grants to this organization, totaling roughly $2.1M, appear in IRS filings.
EIN: 043222167
Newburyport, MA
Medical Research N.E.C.
NTEE: H99
Latest filing: 2025
Total Revenue$2.4M
Total Expenses$2.0M
Total Assets$5.5M
Grant Records74
Funding Total$2.1M
Filing Years2021–2025
Where $100 goes at FRAXA Research Foundation Inc
How FRAXA Research Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$90
Programs
the work itself
$5
Management
running the organization
$5
Fundraising
raising the next dollar
Inside the $90 for programs
$83
To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X
$7
To fund programs for the purpose of educating the general public about Fragile X
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
$15,000
$136,701
For grant recipient's exempt purposes
$133,905
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
$50,000
GENERAL SUPPORT
$25,000
Showing up to 5 of 74 total records — full history available with membership.
Officers & Directors
Director
Andres Centellas
Director
Dean Clark
Board Chair
Deborah Stevenson
Director
Elizabeth Mazzola
Director
James Vershbow
President
Katherine Clapp
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $2.4M | $2.0M | $5.5M |
| 2024 | $2.3M | $1.4M | $5.0M |
| 2023 | $2.0M | $1.8M | $4.0M |
| 2022 | $2.0M | $1.9M | $3.5M |
| 2021 | $2.1M | $1.4M | $3.9M |
Between 2021 and 2025, reported annual revenue grew from $2.1M to $2.4M (+18%), with total assets most recently reported at $5.5M.
Interactive year-over-year charts and full filing details available with membership.