Mission
THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
Public Charity
VHL ALLIANCE INC
VHL ALLIANCE INC, of BOSTON, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $1.2M in revenue, $1.0M in expenses, $2.6M in total assets. 38 publicly reported grants to this organization, totaling roughly $713K, appear in IRS filings.
EIN: 043180414
BOSTON, MA
Latest filing: 2025
Total Revenue$1.2M
Total Expenses$1.0M
Total Assets$2.6M
Grant Records38
Funding Total$713K
Filing Years2020–2025
Sample Grants Received
HEALTH GENERAL
$13,000
$11,900
For grant recipient's exempt purposes
$8,150
GENERAL SUPPORT
$6,521
For grant recipient's exempt purposes
$16,450
Showing up to 5 of 38 total records — full history available with membership.
Officers & Directors
DIRECTOR
Cary Schwanitz
DIRECTOR
Daffodil Baez
DIRECTOR
Daniel Batten
SECRETARY
Jacqueline Zarro
DIRECTOR
John Josey
VICE CHAIR
Kwame Garrett Price
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.2M | $1.0M | $2.6M |
| 2024 | $1.5M | $963K | $2.3M |
| 2023 | $950K | $1.1M | $1.9M |
| 2021 | $1.1M | $821K | $2.1M |
| 2020 | $612K | $767K | $1.7M |
Between 2020 and 2025, reported annual revenue grew from $612K to $1.2M (+92%), with total assets most recently reported at $2.6M.
Interactive year-over-year charts and full filing details available with membership.