Mission
THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
Public Charity
VHL ALLIANCE INC
VHL ALLIANCE INC, of BOSTON, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $1.2M in revenue, $1.0M in expenses, $2.6M in total assets. 38 publicly reported grants to this organization, totaling roughly $713K, appear in IRS filings.
EIN: 043180414
BOSTON, MA
Hospitals
NTEE: E20
Latest filing: 2025
Total Revenue$1.2M
Total Expenses$1.0M
Total Assets$2.6M
Grant Records38
Funding Total$713K
Filing Years2020–2025
Where $100 goes at Vhl Alliance Inc
How Vhl Alliance Inc divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$84
Programs
the work itself
$6
Management
running the organization
$10
Fundraising
raising the next dollar
Inside the $84 for programs
$84
The Vhl Alliance is the largest private funder of vhl research worldwide, we invest crucial capital into peer-reviewed science, directly fueling the work of leading vhl scientists to…
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
HEALTH GENERAL
$13,000
$11,900
For grant recipient's exempt purposes
$8,150
GENERAL SUPPORT
$6,521
For grant recipient's exempt purposes
$16,450
Showing up to 5 of 38 total records — full history available with membership.
Officers & Directors
DIRECTOR
Cary Schwanitz
DIRECTOR
Daffodil Baez
DIRECTOR
Daniel Batten
SECRETARY
Jacqueline Zarro
DIRECTOR
John Josey
VICE CHAIR
Kwame Garrett Price
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1.2M | $1.0M | $2.6M |
| 2024 | $1.5M | $963K | $2.3M |
| 2023 | $950K | $1.1M | $1.9M |
| 2021 | $1.1M | $821K | $2.1M |
| 2020 | $612K | $767K | $1.7M |
Between 2020 and 2025, reported annual revenue grew from $612K to $1.2M (+92%), with total assets most recently reported at $2.6M.
Interactive year-over-year charts and full filing details available with membership.