Mission
TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Public Charity
NEUROFIBROMATOSIS NETWORK
Based in WHEATON, IL, NEUROFIBROMATOSIS NETWORK operates as a Public Charity. The organization reported $575K in revenue, $566K in expenses, $1.3M in total assets for fiscal year 2025. Imperigo tracks 15 reported grant relationships connected to this organization totaling approximately $213K.
EIN: 043030760
WHEATON, IL
Cancer Research
NTEE: H30
Latest filing: 2025
Total Revenue$575K
Total Expenses$566K
Total Assets$1.3M
Grant Records15
Funding Total$213K
Filing Years2020–2025
Sample Grants Received
GENERAL OPERATING SUPPORT
$10,000
GENERAL SUPPORT
$6,157
MEDICAL RESEARCH
$25,000
PROGRAM SUPPORT
$7,256
For grant recipient's exempt purposes
$6,800
Showing up to 5 of 15 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Adam Rosenberg
BOARD MEMBER
Beau Sheedy
BOARD MEMBER
Cheri Stewart
BOARD MEMBER
Dr Frank Buono
TREASURER
Gregg Erickson
PRESIDENT
John Manth
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $575K | $566K | $1.3M |
| 2024 | $452K | $491K | $1.2M |
| 2023 | $410K | $488K | $1.2M |
| 2022 | $549K | $378K | $1.2M |
| 2020 | $347K | $308K | $771K |
Between 2020 and 2025, reported annual revenue grew from $347K to $575K (+66%), with total assets most recently reported at $1.3M.
Interactive year-over-year charts and full filing details available with membership.