Mission
TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Public Charity
NEUROFIBROMATOSIS NETWORK
Based in WHEATON, IL, NEUROFIBROMATOSIS NETWORK operates as a Public Charity. The organization reported $575K in revenue, $566K in expenses, $1.3M in total assets for fiscal year 2025. Imperigo tracks 17 reported grant relationships connected to this organization totaling approximately $219K.
EIN: 043030760
WHEATON, IL
Cancer Research
NTEE: H30
Latest filing: 2025
Total Revenue$575K
Total Expenses$566K
Total Assets$1.3M
Grant Records17
Funding Total$219K
Filing Years2020–2025
Where $100 goes at Neurofibromatosis Network
How Neurofibromatosis Network divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$85
Programs
the work itself
$7
Management
running the organization
$8
Fundraising
raising the next dollar
Inside the $85 for programs
$85
To provide those with neurofibromatosis with information about the disorder and help families find medical, social, and genetic counseling
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
GENERAL OPERATING SUPPORT
$10,000
GENERAL SUPPORT
$6,157
GENERAL SUPPORT
$6,157
MEDICAL RESEARCH
$25,000
PROGRAM SUPPORT
$7,256
Showing up to 5 of 17 total records — full history available with membership.
Officers & Directors
BOARD MEMBER
Adam Rosenberg
BOARD MEMBER
Beau Sheedy
BOARD MEMBER
Cheri Stewart
BOARD MEMBER
Dr Frank Buono
TREASURER
Gregg Erickson
PRESIDENT
John Manth
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $575K | $566K | $1.3M |
| 2024 | $452K | $491K | $1.2M |
| 2023 | $410K | $488K | $1.2M |
| 2022 | $549K | $378K | $1.2M |
| 2020 | $347K | $308K | $771K |
Between 2020 and 2025, reported annual revenue grew from $347K to $575K (+66%), with total assets most recently reported at $1.3M.
Interactive year-over-year charts and full filing details available with membership.