Mission
THE FIBROUS DYSPLASIA FOUNDATION SERVES PEOPLE AFFECTED WITH FIBROUS DYSPLASIA/MCCUNE-ALBRIGHT SYNDROME THROUGH PROGRAMS OF RESEARCH, EDUCATION, AWARENESS AND SUPPORT.
Public Charity
THE FIBROUS DYSPLASIA FOUNDATION
Based in BETHESDA, MD, THE FIBROUS DYSPLASIA FOUNDATION operates as a Public Charity. The organization reported $246K in revenue, $270K in expenses, $244K in total assets for fiscal year 2025. Imperigo tracks 27 reported grant relationships connected to this organization totaling approximately $264K.
EIN: 020715210
BETHESDA, MD
Voluntary Health Associations & Medical Disciplines N.E.C.
NTEE: G99
Latest filing: 2025
Total Revenue$246K
Total Expenses$270K
Total Assets$244K
Grant Records27
Funding Total$264K
Filing Years2020–2025
Where $100 goes at The Fibrous Dysplasia Foundation
How The Fibrous Dysplasia Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.
$70
Programs
the work itself
$16
Management
running the organization
$14
Fundraising
raising the next dollar
Inside the $70 for programs
$26
Research programs
$20
Advocacy programs
$19
Education program
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
For grant recipient's exempt purposes
$19,750
HEALTH
$13,000
GENERAL SUPPORT
$11,270
GENERAL SUPPORT
$11,230
GENERAL SUPPORT
$11,230
Showing up to 5 of 27 total records — full history available with membership.
Officers & Directors
EXECUTIVE DI
Adrienne Mcbride
BOARD PRESID
Anne Corvelle
DIRECTOR
Carmel Shemmesh-Rafalowsky
TREASURER
Christopher Guest
BOARD VICE P
Cindi Brandt Levin
DIRECTOR
Eric Chien-Wei Liao
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $246K | $270K | $244K |
| 2024 | $323K | $388K | $267K |
| 2023 | $283K | $378K | $329K |
| 2021 | $395K | $351K | $422K |
| 2020 | $245K | $224K | $269K |
Between 2020 and 2025, reported annual revenue held roughly steady at around $246K, with total assets most recently reported at $244K.
Interactive year-over-year charts and full filing details available with membership.