Public Charity

ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS

Based in CHARLOTTESVILLE, VA, ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS operates as a Public Charity. The organization reported $1.4M in revenue, $1.3M in expenses, $1.1M in total assets for fiscal year 2025. Imperigo tracks 46 reported grant relationships connected to this organization totaling approximately $2.1M.

EIN: 020600697 CHARLOTTESVILLE, VA Specifically Named Diseases NTEE: G80 Latest filing: 2025
Total Revenue$1.4M
Total Expenses$1.3M
Total Assets$1.1M
Grant Records46
Funding Total$2.1M
Filing Years2021–2025

Mission

THE MISSION OF ANGIOMA ALLIANCE IS TO DRIVE A CURE FOR CAVERNOUS MALFORMATION AND IMPROVES LIVES FOR ALL AFFECTED.

Where $100 goes at Angioma Alliance DBA Alliance to Cure Cavernous Malformations

How Angioma Alliance DBA Alliance to Cure Cavernous Malformations divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$81 Programs the work itself
$6 Management running the organization
$13 Fundraising raising the next dollar

Inside the $81 for programs

$42
Facilitate and participate in cavernous malformation research to achieve a complete understanding of the disease and facilitate clinical drug trials and other treatment improvements
52% of program spending
$33
Establish a network of clinical research centers in preparation for clinical drug trials and to facilitate consistent treatment
40% of program spending
$6
Provide disease and resource information to educate and improve the lives of people affected by cavernous malformations, caregivers, health professionals, researchers, policymakers, the media, and the general public.To…
8% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

CEO Cornelia Lee Psyd
CHAIR David Borland
VICE CHAIR Dorothy Robinson
INDUSTRY RELATIONS DIRECTORR Jianbo Hu
DIRECTOR John Andres
DIRECTOR Joseph Zabramski Md

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,701,620 31 grants
Health & Medicine
$267,486 10 grants
Research & Policy
$87,060 2 grants
Unspecified
$25,177 2 grants

Financial Trends

Year Revenue Expenses Assets
2025 $1.4M $1.3M $1.1M
2024 $1.3M $1.4M $1.1M
2023 $1.3M $1.4M $1.1M
2022 $1.1M $800K $1.2M
2021 $831K $434K $912K

Between 2021 and 2025, reported annual revenue grew from $831K to $1.4M (+64%), with total assets most recently reported at $1.1M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS

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