Mission
Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
Public Charity
Shwachman-Diamond Syndrome Alliance Inc
Shwachman-Diamond Syndrome Alliance Inc, of Woburn, MA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $133K in revenue, $357K in expenses, $575K in total assets. IRS filings disclose 1 grants awarded by this foundation, totaling roughly $8K.
EIN: 844654297
Woburn, MA
Birth Defects & Genetic Diseases
NTEE: G20
Latest filing: 2024
Total Revenue$133K
Total Expenses$357K
Total Assets$575K
Grants Given1
Grant Total$8K
Filing Years2021–2024
Where $100 goes at Shwachman-Diamond Syndrome Alliance Inc
How Shwachman-Diamond Syndrome Alliance Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.
$79
Programs
the work itself
$12
Management
running the organization
$9
Fundraising
raising the next dollar
Inside the $79 for programs
$79
The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Given
Medical Research - Biobank Development
$8,000
Showing up to 5 of 1 total records — full history available with membership.
Officers & Directors
Member
Dora Erdos
CEO
Eszter Hars
Member
Indrani Chatterjee
President
Lotien Huang
Secretary
Marcelo G Decastro
Treasurer
William Chen
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $133K | $357K | $575K |
| 2023 | $289K | $126K | $798K |
| 2022 | $337K | $103K | $635K |
| 2021 | $388K | $2K | $401K |
Between 2021 and 2024, reported annual revenue declined from $388K to $133K (-66%), with total assets most recently reported at $575K.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in NJ.
NJ
Full geographic grant map with state-by-state breakdown available with membership.