Private Foundation

THE JULIAN CHANG FAMILY FOUNDATION FOR DRAVET

THE JULIAN CHANG FAMILY FOUNDATION FOR DRAVET, of SAN FRANCISCO, CA, is a Private Foundation tracked in Imperigo's IRS 990 database. The 2024 filing shows $25K in revenue, $259K in expenses, $28K in total assets. IRS filings disclose 6 grants awarded by this foundation, totaling roughly $508K.

EIN: 833636526 SAN FRANCISCO, CA Latest filing: 2024
Total Revenue$25K
Total Expenses$259K
Total Assets$28K
Grants Given6
Grant Total$508K
Filing Years2020–2024

Sample Grants Given

DRAVET SYNDROME FOUNDATION
CHERRY HILL, NJ · 2024
RESEARCH GRANT
$200,000
DRAVET SYNDROME FOUNDATION
CHERRY HILL, NJ · 2024
RESEARCH GRANT
$50,000
DRAVET SYNDROME FOUNDATION
CHERRY HILL, NJ · 2022
RESEARCH GRANT
$82,500
DRAVET SYNDROME FOUNDATION
CHERRY HILL, NJ · 2022
RESEARCH GRANT
$75,000
DRAVET SYNDROME FOUNDATION
CHERRY HILL, NJ · 2021
CO-SPONSORSHIP OF TWO RESEARCH PROJECTS IN CONJUNCTION WITH DRAVET SYNDROME FOUNDATION. PROJECT 1: TWO-YEAR RESEARCH GRANT ON KETOGENIC DIET MODULATED BRAIN ENERGY METABOLISM IN DRAVET SYNDROME- A MOUSE MODEL STUDY OF METABOLISM AND WHY KETOGENIC DIET WORKS, LEADING TO POTENTIAL MEDICATION OPTIONS RATHER THAN RESTRICTIVE DIET FOR KIDS. DMI BRAIN IMAGING OF MICE AND THEN KIDS, SO A NON-INVASIVE PROCEDURE. PROJECT 2: OPTIMIZING THE REGINAL ADMINISTRATION OF SCN8A-TARGETING RNAI THERAPY- A POST-DOCTORAL RESEARCH PROJECT TO STUDY THE SCN8A GENE, RNA BASED, AAV VECTORS FOR ONE TREATMENT.
$50,000

Showing up to 5 of 6 total records — full history available with membership.

Officers & Directors

PRESIDENT Daniel Chang
SECRETARY Deborah Chang
DIRECTOR Joseph Sullivan
TREASURER Zac Maufe

Officer compensation and complete director data available with membership.

Top Grant Purposes

RESEARCH GRANT
$407,500 4 grants
CO-SPONSORSHIP OF TWO RESEARCH PROJECTS IN CONJUNCTION WITH DRAVET SYNDROME FOUNDATION. PROJECT 1: TWO-YEAR RESEARCH GRANT ON KETOGENIC DIET MODULATED BRAIN ENERGY METABOLISM IN DRAVET SYNDROME- A MOUSE MODEL STUDY OF METABOLISM AND WHY KETOGENIC DIET WORKS, LEADING TO POTENTIAL MEDICATION OPTIONS RATHER THAN RESTRICTIVE DIET FOR KIDS. DMI BRAIN IMAGING OF MICE AND THEN KIDS, SO A NON-INVASIVE PROCEDURE. PROJECT 2: OPTIMIZING THE REGINAL ADMINISTRATION OF SCN8A-TARGETING RNAI THERAPY- A POST-DOCTORAL RESEARCH PROJECT TO STUDY THE SCN8A GENE, RNA BASED, AAV VECTORS FOR ONE TREATMENT.
$50,000 1 grant
MULTI-YEAR DRAVET SYNDROME GAIT STUDY DESIGNED TO PROVIDE SYSTEMATIC AND EXPERT ASSESSMENT OF GAIT LONGITUDINALLY IN A COHORT OF 100 CHILDREN WITH DRAVET SYNDROME OVER THE COURSE OF THREE YEARS.
$50,000 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $25K $259K $28K
2023 $250K $23K $265K
2022 $101K $162K $35K
2021 $100K $56K $96K
2020 $155K $112K $52K

Between 2020 and 2024, reported annual revenue declined from $155K to $25K (-84%), with total assets most recently reported at $28K.

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in NJ.

NJ

Full geographic grant map with state-by-state breakdown available with membership.

See the full picture for THE JULIAN CHANG FAMILY FOUNDATION FOR DRAVET

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