Mission
TO RAISE AWARENESS FOR RARE DISEASES AND TO RAISE MONEY TO SUPPORT RESEARCH IN RARE DISEASES.
Small Public Charity
DARE TO BE RARE INC
DARE TO BE RARE INC is a private foundation categorized as Small Public Charity based in OYSTER BAY COVE, NY. Its most recent IRS filing (2025) reports revenue of $2K, expenses of $6K, total assets of $8K.
EIN: 815240164
OYSTER BAY COVE, NY
Alliances & Advocacy
NTEE: T01
Latest filing: 2025
Total Revenue$2K
Total Expenses$6K
Total Assets$8K
Grants Given0
Filing Years2019–2025
Where $100 goes at Dare to Be Rare Inc
How Dare to Be Rare Inc divides every $100 it spends, from its own Form 990-EZ filings, averaged across 6 years.
$87
Programs
the work itself
$13
Everything else
operations and overhead
Form 990-EZ reports program spending but doesn't separate management from fundraising, so those are shown together.
Inside the $87 for programs
$87
Sale and distribution of t shirts to raise money and awareness To raise awareness for rare diseases and to raise money to support research in rare diseases
Source: Form 990-EZ filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Officers & Directors
PRESIDENT
Donna Appell
COO
Kerri Bertolini
CFO
Renee Mcevoy
Officer compensation and complete director data available with membership.
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $2K | $6K | $8K |
| 2023 | $2K | $2K | $8K |
| 2021 | $2K | $3K | $3K |
| 2020 | $172 | $3K | $627 |
| 2019 | $1K | $7K | $336 |
Between 2019 and 2025, reported annual revenue grew from $1K to $2K (+67%), with total assets most recently reported at $8K.
Interactive year-over-year charts and full filing details available with membership.