Public Charity

THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC

Based in SARASOTA, FL, THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC operates as a Public Charity. The organization reported $4.5M in revenue, $5.5M in expenses, $7.5M in total assets for fiscal year 2024. Imperigo tracks 70 reported grant relationships connected to this organization totaling approximately $3.6M.

EIN: 541784426 SARASOTA, FL Specifically Named Diseases NTEE: G80 Latest filing: 2024
Total Revenue$4.5M
Total Expenses$5.5M
Total Assets$7.5M
Grant Records70
Funding Total$3.6M
Filing Years2020–2024

Mission

MISSION OBJECTIVES: (A) OFFER SUPPORT AND ENCOURAGEMENT TO THE WALDENSTROM'S MACROGLOBULINEMIA COMMUNITY AND OTHERS WITH AN INTEREST IN THE DISEASE, (B) TO PROVIDE INFORMATION AND EDUCATIONAL PROGRAMS THAT ADDRESS PATIENTS AND CAREGIVERS' CONCERNS AND (C) TO PROVIDE AND SUPPORT RESEARCH LEADING TO BETTER TREATMENTS AND ULTIMATELY A CURE.

Where $100 goes at The International Waldenstrom's Macroglobulinemia Foundation Inc

How The International Waldenstrom's Macroglobulinemia Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.

$84 Programs the work itself
$7 Management running the organization
$9 Fundraising raising the next dollar

Inside the $84 for programs

$50
Provided 44 payments towards 28 different grants to further research in waldenstrom's macroglobulinemia: toward a rational targeted therapy, direct targeting the myd88 l265p driver mutation in wm, anti-tumor…
60% of program spending · Reported in the filing: 28 grants
$27
Other program services for international outreach and other program services for support groups
32% of program spending
$6
Educational forums hosted a national educational forum for waldenstrom's macroglobulinemia patients and provided a grant to fund patient educational forums
7% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIR. OF DEVELOPMENT Annette Preston
VICE-CHAIR FUNDRAISING Carl Harrington
SECRETARY/TREASURER Carl Lisman
TRUSTEE Carol Welsh Gray
TRUSTEE Craig Prizant
TRUSTEE David Schnell

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$1,831,736 39 grants
Health & Medicine
$1,052,059 20 grants
Research & Policy
$682,000 8 grants
Education
$8,000 1 grant
Unspecified
$8,817 1 grant

Financial Trends

Year Revenue Expenses Assets
2024 $4.5M $5.5M $7.5M
2023 $3.3M $4.1M $8.3M
2022 $4.2M $2.6M $9.1M
2021 $4.5M $2.5M $7.4M
2020 $4.1M $2.6M $5.3M

Between 2020 and 2024, reported annual revenue grew from $4.1M to $4.5M (+9%), with total assets most recently reported at $7.5M.

Interactive year-over-year charts and full filing details available with membership.

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