Before you apply to The Rare Disease Charitable Foundation
Who to contact, what to include, deadlines, typical grant size and geographic focus are available with membership.
Private Foundation
THE RARE DISEASE CHARITABLE FOUNDATION
THE RARE DISEASE CHARITABLE FOUNDATION is a private foundation categorized as Private Foundation based in Lexington, MA. Its most recent IRS filing (2022) reports revenue of $162.8M, expenses of $171.3M. Imperigo tracks 2 reported grants from this foundation totaling approximately $328.5M.
EIN: 453132103
Lexington, MA
Latest filing: 2022
Total Revenue$162.8M
Total Expenses$171.3M
Grants Given2
Grant Total$328.5M
Filing Years2021–2022
Sample Grants Given
Approximately 449 Patients
Pharmaceutical products to people
$171,314,161
Approximately 389 Patients
Pharmaceutical products to people
$157,205,783
Showing up to 5 of 2 total records — full history available with membership.
Officers & Directors
Vice Chair
Janeen Blake
Chair
Karen Shahinian
Member
Michael Riffitts
Secretary
Ryan Mccarthy
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2022 | $162.8M | $171.3M | — |
| 2021 | $158.0M | $157.2M | $20.0M |
Between 2021 and 2022, reported annual revenue grew from $158.0M to $162.8M (+3%).
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in MA.
MA
Full geographic grant map with state-by-state breakdown available with membership.