Private Foundation

THE RARE DISEASE CHARITABLE FOUNDATION

THE RARE DISEASE CHARITABLE FOUNDATION is a private foundation categorized as Private Foundation based in Lexington, MA. Its most recent IRS filing (2022) reports revenue of $162.8M, expenses of $171.3M. Imperigo tracks 2 reported grants from this foundation totaling approximately $328.5M.

EIN: 453132103 Lexington, MA General Support NTEE: DEFAULT Latest filing: 2022
Total Revenue$162.8M
Total Expenses$171.3M
Grants Given2
Grant Total$328.5M
Filing Years2021–2022

Sample Grants Given

Approximately 449 Patients
Various, MA · 2022
Pharmaceutical products to people
$171,314,161
Approximately 389 Patients
Various, MA · 2021
Pharmaceutical products to people
$157,205,783

Showing up to 5 of 2 total records — full history available with membership.

Officers & Directors

Vice Chair Janeen Blake
Chair Karen Shahinian
Member Michael Riffitts
Secretary Ryan Mccarthy

Officer compensation and complete director data available with membership.

Top Grant Purposes

Pharmaceutical products to people
$328,519,944 2 grants

Financial Trends

Year Revenue Expenses Assets
2022 $162.8M $171.3M —
2021 $158.0M $157.2M $20.0M

Between 2021 and 2022, reported annual revenue grew from $158.0M to $162.8M (+3%).

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in MA.

MA

Full geographic grant map with state-by-state breakdown available with membership.

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