Mission
See Schedule O.
Public Charity
National Urea Cycle Disorders Foundation
National Urea Cycle Disorders Foundation, of La Canada Flintridge, CA, is a Public Charity tracked in Imperigo's IRS 990 database. The 2024 filing shows $285K in revenue, $426K in expenses, $1.0M in total assets. IRS filings disclose 1 grants awarded by this foundation, totaling roughly $20K.
EIN: 411661444
La Canada Flintridge, CA
Health Care N.E.C.
NTEE: E99
Latest filing: 2024
Total Revenue$285K
Total Expenses$426K
Total Assets$1.0M
Grants Given1
Grant Total$20K
Filing Years2020–2024
Where $100 goes at National Urea Cycle Disorders Foundation
How National Urea Cycle Disorders Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.
$90
Programs
the work itself
$9
Management
running the organization
$1
Fundraising
raising the next dollar
Inside the $90 for programs
$45
Research,Science/Medicine Programs:1)NUCDF Fellowship Award attracts/supports new investigators in the field of urea cycle disorder research & clinical care; goal is to accelerate research & improve access to quality…
$36
Advocacy, Education & Awareness Programs 1) Advocacy partnerships, policy & programs to benefit UCD patient community & rare disease community at large
$9
NUCDF Patient and Family Support Programs 1) Serve as lifelines to families & affected individuals worldwide in need of information peer-to-peer support to families and patients struggling with…
Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Given
$19,659
Showing up to 5 of 1 total records — full history available with membership.
Officers & Directors
Board Member
Amanda Sonntag
Board Member
Antonia Martinez
Secretary & Treasurer
Eva Oseland
Deputy Director
Jill Williams
Board Member
Lori Shocky
Board Chair
Mary Alice Omalley
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $285K | $426K | $1.0M |
| 2023 | $518K | $193K | $1.2M |
| 2022 | $96K | $195K | $821K |
| 2020 | $127K | $195K | $1000K |
Between 2020 and 2024, reported annual revenue grew from $127K to $285K (+125%), with total assets most recently reported at $1.0M.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in WA.
WA
Full geographic grant map with state-by-state breakdown available with membership.