Public Charity

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC

ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC is a Public Charity headquartered in Southfield, MI. Financial data from the 2025 filing: $283K revenue, $201K expenses, $1.7M total assets. 17 publicly reported grants to this organization, totaling roughly $195K, appear in IRS filings.

EIN: 383225425 Southfield, MI Specifically Named Diseases Research NTEE: H80 Latest filing: 2025
Total Revenue$283K
Total Expenses$201K
Total Assets$1.7M
Grant Records17
Funding Total$195K
Filing Years2021–2025

Mission

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Where $100 goes at Alternating Hemiplegia of Childhood Foundation Inc

How Alternating Hemiplegia of Childhood Foundation Inc divides every $100 it spends, from its own Form 990 filings, averaged across 4 years.

$71 Programs the work itself
$29 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $71 for programs

$27
Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models)
38% of program spending
$21
Grant given to Northwestern University to fund a fellowship for Dr
29% of program spending
$13
The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C
19% of program spending

Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.

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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Adalberto Duarte
Director Bill Gerber
Secretary Cate Cohen
Treasurer Gene Andrasco
Vice-President of Education & Family Support Heather Gates
Director Kathy Sharo

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$161,183 14 grants
Health & Medicine
$27,745 2 grants
Unspecified
$6,149 1 grant

Financial Trends

Year Revenue Expenses Assets
2025 $283K $201K $1.7M
2024 $323K $221K $1.5M
2023 $350K $199K $1.4M
2021 $514K $404K $709K

Between 2021 and 2025, reported annual revenue declined from $514K to $283K (-45%), with total assets most recently reported at $1.7M.

Interactive year-over-year charts and full filing details available with membership.

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