Mission
THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.
Public Charity
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC is a nonprofit organization categorized as Public Charity based in WASHINGTON, DC. Its most recent IRS filing (2025) reports revenue of $12.0M, expenses of $11.9M, total assets of $12.7M. Imperigo tracks 119 reported grant relationships connected to this organization totaling approximately $10.5M.
EIN: 311405490
WASHINGTON, DC
Human Service Organizations
NTEE: P20
Latest filing: 2025
Total Revenue$12.0M
Total Expenses$11.9M
Total Assets$12.7M
Grant Records119
Funding Total$10.5M
Filing Years2020–2025
Where $100 goes at The Parent Project for Muscular Dystrophy Research Inc
How The Parent Project for Muscular Dystrophy Research Inc divides every $100 it spends, from its own Form 990 filings, averaged across 8 years.
$87
Programs
the work itself
$7
Management
running the organization
$6
Fundraising
raising the next dollar
Inside the $87 for programs
$58
Researchppmd's research program identifies and funds the most promising near- and long-term therapeutic strategies for duchenne and becker muscular dystrophy
$20
Educationppmd's education initiatives equip families, healthcare providers, and the broader community with the information needed to navigate duchenne care across all stages of the disorder
$9
Advocacyppmd leads federal and state-level advocacy to improve access to care, accelerate therapeutic development, and ensure regulatory frameworks support the duchenne community
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
$50,000
GENERAL SUPPORT
$13,890
GENERAL SUPPORT
$10,681
HUMAN SERVICES
$1,750,125
GENERAL SUPPORT
$280,000
Showing up to 5 of 119 total records — full history available with membership.
Officers & Directors
VICE CHAIR
Alpa Khushalani
VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SVCS.
Ann Martin
DIRECTOR
Colin Rensch
EMERITUS
David Hofstein Jd
TREASURER
Dawn Rezkalla
SECRETARY
Deanne Friar
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $12.0M | $11.9M | $12.7M |
| 2024 | $14.3M | $12.9M | $12.6M |
| 2023 | $13.9M | $12.1M | $10.4M |
| 2022 | $10.8M | $11.0M | $8.6M |
| 2020 | $9.6M | $7.9M | $7.1M |
Between 2020 and 2025, reported annual revenue grew from $9.6M to $12.0M (+26%), with total assets most recently reported at $12.7M.
Interactive year-over-year charts and full filing details available with membership.