Public Charity

GLOBAL GENES

Based in WASHINGTON, DC, GLOBAL GENES operates as a Public Charity. The organization reported $7.1M in revenue, $7.4M in expenses, $1.5M in total assets for fiscal year 2024. Imperigo tracks 23 reported grant relationships connected to this organization totaling approximately $3.8M.

EIN: 263331487 WASHINGTON, DC Fund Raising & Fund Distribution NTEE: G12 Latest filing: 2024
Total Revenue$7.1M
Total Expenses$7.4M
Total Assets$1.5M
Grant Records23
Funding Total$3.8M
Filing Years2019–2024

Mission

GLOBAL GENES' MISSION IS TO DRIVE CHANGE THROUGH THE SUPPORT OF RARE DISEASE PATIENTS AND FAMILIES WHILE EQUIPPING ADVOCACY LEADERS WITH IMPORTANT TOOLS, RESOURCES, MENTORING, AND CONNECTIONS TO FURTHER ADVANCE AWARENESS, EDUCATION, AND RESEARCH.

Where $100 goes at Global Genes

How Global Genes divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$81 Programs the work itself
$13 Management running the organization
$6 Fundraising raising the next dollar

Inside the $81 for programs

$81
Global Genes' programs provide next-generation patient advocates with a continuum of services to accelerate their path from early support and awareness through research readiness, using a collaborative approach…
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2024. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

DIRECTOR Alvin Shih
DIRECTOR Betsy Bogard
DIRECTOR Caroline Loewy
CEO Charlene Son Rigby
SECRETARY Christina Hartman
DIRECTOR, PROGRAM OPERATIONS Chwenwoan Kuan

Officer compensation and complete director data available with membership.

Top Grant Purposes

Health & Medicine
$3,268,005 8 grants
Fundraising & Sponsorship
$100,000 5 grants
General Support
$90,934 5 grants
Education
$55,000 1 grant
Unspecified
$297,927 4 grants

Financial Trends

Year Revenue Expenses Assets
2024 $7.1M $7.4M $1.5M
2023 $8.5M $8.6M $2.1M
2022 $5.6M $7.7M $2.3M
2020 $5.6M $5.2M $3.1M
2019 $7.0M $6.5M $2.9M

Between 2019 and 2024, reported annual revenue grew from $7.0M to $7.1M (+2%), with total assets most recently reported at $1.5M.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for GLOBAL GENES

Complete financials, all 23 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

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