Public Charity

NEW JERSEY RETT SYNDROME ASSOCIATIO

Based in FREEHOLD, NJ, NEW JERSEY RETT SYNDROME ASSOCIATIO operates as a Public Charity. The organization reported $44K in revenue, $55K in expenses, $52K in total assets for fiscal year 2025. Imperigo tracks 12 reported grants from this foundation totaling approximately $218K.

EIN: 261359425 FREEHOLD, NJ Specifically Named Diseases Research NTEE: H80 Latest filing: 2025
Total Revenue$44K
Total Expenses$55K
Total Assets$52K
Grants Given12
Grant Total$218K
Filing Years2021–2025

Mission

TO INCREASE PUBLIC UNDERSTANDING OF THE RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.

Where $100 goes at New Jersey Rett Syndrome Associatio

How New Jersey Rett Syndrome Associatio divides every $100 it spends, from its own Form 990 filings, averaged across 5 years.

$89 Programs the work itself
$11 Management running the organization
$0 Fundraising none reported

No fundraising costs are reported. That often means fundraising runs through a separate affiliated organization that files its own return.

Inside the $89 for programs

$89
To increase public understanding of rett syndrome, its nature and treatment to research rett syndrome and reduce the stigma of the same by means of education of the…
All program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Sample Grants Given

INTERNATIONAL RETT SYNDROME FOUNDAT
CINCINNATI, OH · 2024
TO HELP FUND RESEARC
$20,000
RETT SYNDROME RESEARCH TRUST
TRUMBULL, CT · 2024
TO HELP FUND RESEARC
$20,000
MONTEFIORE MEDICAL CENTER-RETT CENT
BRONX, NY · 2024
TO HELP FUND RESEARC
$10,000
INTERNATIONAL RETT SYNDROME FOUNDAT
CINCINNATI, OH · 2022
TO HELP FUND RESEARC
$20,000
RETT SYNDROME RESEARCH TRUST
TRUMBULL, CT · 2022
TO HELP FUND RESEARC
$12,000

Showing up to 5 of 12 total records — full history available with membership.

Officers & Directors

TRUSTEE Carla Benetatos
TRUSTEE Carl Raso Md
TRUSTEE Gerard Saydah
EXEC. DIRECT Leslie Greenfield
TREASURER Robin Diamond
TRUSTEE Steve Medlin

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$218,000 12 grants

Financial Trends

Year Revenue Expenses Assets
2025 $44K $55K $52K
2024 $30K $6K $63K
2023 $21K $46K $39K
2022 $57K $62K $63K
2021 $55K $75K $69K

Between 2021 and 2025, reported annual revenue declined from $55K to $44K (-20%), with total assets most recently reported at $52K.

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in CT, NY, OH.

CTNYOH

Full geographic grant map with state-by-state breakdown available with membership.

See the full picture for NEW JERSEY RETT SYNDROME ASSOCIATIO

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