Public Charity

NEW JERSEY RETT SYNDROME ASSOCIATIO

Based in FREEHOLD, NJ, NEW JERSEY RETT SYNDROME ASSOCIATIO operates as a Public Charity. The organization reported $30K in revenue, $6K in expenses, $63K in total assets for fiscal year 2024. Imperigo tracks 9 reported grants from this foundation totaling approximately $168K.

EIN: 261359425 FREEHOLD, NJ Latest filing: 2024
Total Revenue$30K
Total Expenses$6K
Total Assets$63K
Grants Given9
Grant Total$168K
Filing Years2021–2024

Mission

TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.

Sample Grants Given

INTERNATIONAL RETT SYNDROME FOUNDAT
CINCINNATI, OH · 2022
TO HELP FUND RESEARC
$20,000
RETT SYNDROME RESEARCH TRUST
TRUMBULL, CT · 2022
TO HELP FUND RESEARC
$12,000
MONTEFIORE MEDICAL CENTER-RETT CENT
BRONX, NY · 2022
TO HELP FUND RESEARC
$10,000
INTERNATIONAL RETT SYNDROME FOUNDAT
CINCINNATI, OH · 2021
TO HELP FUND RESEARC
$28,000
RETT SYNDROME RESEARCH TRUST
TRUMBULL, CT · 2021
TO HELP FUND RESEARC
$16,000

Showing up to 5 of 9 total records — full history available with membership.

Officers & Directors

TRUSTEE Carla Benetatos
TRUSTEE Carl Raso Md
TRUSTEE Gerard Saydah
EXEC. DIRECT Leslie Greenfield
TREASURER Robin Diamond
TRUSTEE Steve Medlin

Officer compensation and complete director data available with membership.

Top Grant Purposes

TO HELP FUND RESEARC
$168,000 9 grants

Financial Trends

Year Revenue Expenses Assets
2024 $30K $6K $63K
2023 $21K $46K $39K
2022 $57K $62K $63K
2021 $55K $75K $69K

Between 2021 and 2024, reported annual revenue declined from $55K to $30K (-46%), with total assets most recently reported at $63K.

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in CT, NY, OH.

CTNYOH

Full geographic grant map with state-by-state breakdown available with membership.

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