Mission
THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.
Public Charity
RETT SYNDROME RESEARCH TRUST INC
RETT SYNDROME RESEARCH TRUST INC, of TRUMBULL, CT, is a Public Charity tracked in Imperigo's IRS 990 database. The 2025 filing shows $8.7M in revenue, $8.2M in expenses, $20.8M in total assets. 146 publicly reported grants to this organization, totaling roughly $8.0M, appear in IRS filings.
EIN: 260687439
TRUMBULL, CT
Fund Raising & Fund Distribution
NTEE: E12
Latest filing: 2025
Total Revenue$8.7M
Total Expenses$8.2M
Total Assets$20.8M
Grant Records146
Funding Total$8.0M
Filing Years2021–2025
Where $100 goes at Rett Syndrome Research Trust Inc
How Rett Syndrome Research Trust Inc divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.
$91
Programs
the work itself
$2
Management
running the organization
$7
Fundraising
raising the next dollar
Inside the $91 for programs
$82
The organization provides funding to leading research institutions and companies working on rett syndrome and related mecp2 disorders
$3
The organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction
$3
The organization provides funding to leading research institutions working on rett syndrome and related mecp2 disorders
Plus 1 more program. Cost per person served and the full program breakdown are on the full profile.
Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.
Sample Grants Received
General Support
$100,000
GENERAL SUPPORT
$87,634
$37,973
RETT SYNDROME RESEARCH
$35,040
$10,000
Showing up to 5 of 146 total records — full history available with membership.
Officers & Directors
TRUSTEE
Adrian Bird
TRUSTEE
Alba Tull
TRUSTEE
Amy Gilliand
CHAIRMAN
Anthony P Schoener
TRUSTEE
Brad Zelinger
TRUSTEE
Brian Whitmer
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $8.7M | $8.2M | $20.8M |
| 2024 | $9.3M | $11.7M | $20.4M |
| 2023 | $8.5M | $12.3M | $18.5M |
| 2022 | $7.1M | $4.0M | $14.9M |
| 2021 | $8.1M | $4.7M | $13.6M |
Between 2021 and 2025, reported annual revenue grew from $8.1M to $8.7M (+7%), with total assets most recently reported at $20.8M.
Interactive year-over-year charts and full filing details available with membership.