Public Charity

THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION

THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION is a nonprofit organization categorized as Public Charity based in NEEDHAM, MA. Its most recent IRS filing (2025) reports revenue of $1.2M, expenses of $1.2M, total assets of $2.3M. Imperigo tracks 67 reported grant relationships connected to this organization totaling approximately $3.7M.

EIN: 206745475 NEEDHAM, MA Fund Raising & Fund Distribution NTEE: H12 Latest filing: 2025
Total Revenue$1.2M
Total Expenses$1.2M
Total Assets$2.3M
Grant Records67
Funding Total$3.7M
Filing Years2021–2025

Mission

THE ADENOID CYCTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.

Where $100 goes at The Adenoid Cystic Carcinoma Research Foundation

How The Adenoid Cystic Carcinoma Research Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 9 years.

$92 Programs the work itself
$6 Management running the organization
$2 Fundraising raising the next dollar

Inside the $92 for programs

$82
Scientific research
89% of program spending
$10
Patient education
11% of program spending
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Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

Director Bozho Todorich
Director David Morse
Director Elizabeth Wehlage
Director Emma Kinloch
Executive Dir. Jeffrey Kaufman
Director Marnie Kaufman

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$2,992,112 45 grants
Health & Medicine
$630,182 15 grants
Research & Policy
$10,000 1 grant
Unspecified
$25,190 5 grants

Financial Trends

Year Revenue Expenses Assets
2025 $1.2M $1.2M $2.3M
2024 $1.1M $1.5M $2.3M
2023 $1.9M $1.9M $2.7M
2022 $1.4M $1.6M $2.7M
2021 $2.4M $2.1M $3.1M

Between 2021 and 2025, reported annual revenue declined from $2.4M to $1.2M (-52%), with total assets most recently reported at $2.3M.

Interactive year-over-year charts and full filing details available with membership.

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