Public Charity

NATIONAL FABRY DISEASE FOUNDATION

Based in HILLSBOROUGH, NC, NATIONAL FABRY DISEASE FOUNDATION operates as a Public Charity. The organization reported $592K in revenue, $739K in expenses, $270K in total assets for fiscal year 2025. Imperigo tracks 9 reported grant relationships connected to this organization totaling approximately $142K.

EIN: 202944028 HILLSBOROUGH, NC Support N.E.C. NTEE: G19 Latest filing: 2025
Total Revenue$592K
Total Expenses$739K
Total Assets$270K
Grant Records9
Funding Total$142K
Filing Years2020–2025

Mission

TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.

Where $100 goes at National Fabry Disease Foundation

How National Fabry Disease Foundation divides every $100 it spends, from its own Form 990 filings, averaged across 7 years.

$93 Programs the work itself
$6 Management running the organization
$1 Fundraising raising the next dollar

Inside the $93 for programs

$65
Education and awareness
70% of program spending · Reported in the filing: 20 people
$28
Community support
30% of program spending
Share on LinkedIn Share on Facebook
Add this to your website

Source: Form 990 filings with the IRS, latest fiscal year 2025. Shares are from the organization's reported expenses. Data by Imperigo; not affiliated with the IRS.

Officers & Directors

SENIOR PROGRAM MANAGER Casey A Mckenna
VICE CHAIR Derek Halberg
DIRECTOR Elizabeth Gaffin
CHAIR Gerald Walter
TREASURER Melanie Wilson
DIRECTOR Steven Rothman

Officer compensation and complete director data available with membership.

Top Grant Purposes

General Support
$142,061 9 grants

Financial Trends

Year Revenue Expenses Assets
2025 $592K $739K $270K
2024 $575K $683K $414K
2023 $308K $473K $521K
2021 $189K $217K $342K
2020 $545K $394K $370K

Between 2020 and 2025, reported annual revenue grew from $545K to $592K (+9%), with total assets most recently reported at $270K.

Interactive year-over-year charts and full filing details available with membership.

See the full picture for NATIONAL FABRY DISEASE FOUNDATION

Complete financials, all 9 grant records, officer compensation, year-over-year trend charts, a geographic grant map, and data exports — across 880,000+ organizations.

Full Financial History Complete Grant Activity Officer Compensation Year-over-Year Charts Geographic Grant Map Data Exports
7-day free trial Cancel any time