Before you apply to Spinal Muscular Atrophy Foundation
Who to contact, what to include, deadlines, typical grant size and geographic focus are available with membership.
Private Foundation
SPINAL MUSCULAR ATROPHY FOUNDATION
SPINAL MUSCULAR ATROPHY FOUNDATION is a Private Foundation headquartered in JACKSON, WY. Financial data from the 2024 filing: $19.5M revenue, $4.7M expenses, $50.2M total assets. IRS filings disclose 44 grants awarded by this foundation, totaling roughly $7.6M.
EIN: 010759380
JACKSON, WY
Education N.E.C.
NTEE: B99
Latest filing: 2024
Total Revenue$19.5M
Total Expenses$4.7M
Total Assets$50.2M
Grants Given44
Grant Total$7.6M
Filing Years2019–2024
Sample Grants Given
JOHN HOPKINS UNIVERSITY
CHARACTERIZATION OF GENE EXPRESSION IN MOTOR NEURONS IN SMA
$238,814
SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE
TESTING OF MITOCHONDRIAL MODULATORS IN SMA MODELS
$218,006
STANFORD UNIVERSITY
GENERATION OF SPINAL CORD MOTOR NEURONS FROM PLURIPOTENT CELLS
$207,000
UNIVERSITY OF FLORIDA
CHARACTERIZATION OF MUSCLE ENVIRONMENT IN SMA
$197,907
STANFORD UNIVERSITY
OVERSIGHT ON THE STANFORD-SMA FOUNDATION REGENERATIVE MEDICINE PROGRAM PROJECTS
$167,825
Showing up to 5 of 44 total records — full history available with membership.
Officers & Directors
DIRECTOR
Andrew Knight
BOARD CHAIRMAN
Dinakar Singh
DIRECTOR
Douglas Cole Md
DIRECTOR
Gerald Fischbach Md
DIRECTOR
Helen Meates
DIRECTOR
Jonathan Leff
Officer compensation and complete director data available with membership.
Top Grant Purposes
Financial Trends
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $19.5M | $4.7M | $50.2M |
| 2023 | $12.5M | $3.6M | $33.7M |
| 2022 | $25.4M | $4.0M | $24.1M |
| 2020 | $3.4M | $2.6M | $3.6M |
| 2019 | $193K | $1.4M | $1.5M |
Between 2019 and 2024, reported annual revenue grew from $193K to $19.5M (+10021%), with total assets most recently reported at $50.2M.
Interactive year-over-year charts and full filing details available with membership.
Grant Geography
Grants from this foundation were reported to recipients in CA, FL, IL, MA, MD, NY, and 1 other state.
CAFLILMAMDNYPA
Full geographic grant map with state-by-state breakdown available with membership.