Private Foundation

SPINAL MUSCULAR ATROPHY FOUNDATION

SPINAL MUSCULAR ATROPHY FOUNDATION is a Private Foundation headquartered in JACKSON, WY. Financial data from the 2024 filing: $19.5M revenue, $4.7M expenses, $50.2M total assets. IRS filings disclose 44 grants awarded by this foundation, totaling roughly $7.6M.

EIN: 010759380 JACKSON, WY Latest filing: 2024
Total Revenue$19.5M
Total Expenses$4.7M
Total Assets$50.2M
Grants Given44
Grant Total$7.6M
Filing Years2019–2024

Sample Grants Given

JOHN HOPKINS UNIVERSITY
BALTIMORE, MD · 2024
CHARACTERIZATION OF GENE EXPRESSION IN MOTOR NEURONS IN SMA
$238,814
SWISS FEDERAL TECHNOLOGY INSTITUTE OF LAUSANNE
2024
TESTING OF MITOCHONDRIAL MODULATORS IN SMA MODELS
$218,006
STANFORD UNIVERSITY
PALO ALTO, CA · 2024
GENERATION OF SPINAL CORD MOTOR NEURONS FROM PLURIPOTENT CELLS
$207,000
UNIVERSITY OF FLORIDA
GAINESVILLE, FL · 2024
CHARACTERIZATION OF MUSCLE ENVIRONMENT IN SMA
$197,907
STANFORD UNIVERSITY
PALO ALTO, CA · 2024
OVERSIGHT ON THE STANFORD-SMA FOUNDATION REGENERATIVE MEDICINE PROGRAM PROJECTS
$167,825

Showing up to 5 of 44 total records — full history available with membership.

Officers & Directors

DIRECTOR Andrew Knight
BOARD CHAIRMAN Dinakar Singh
DIRECTOR Douglas Cole Md
DIRECTOR Gerald Fischbach Md
DIRECTOR Helen Meates
DIRECTOR Jonathan Leff

Officer compensation and complete director data available with membership.

Top Grant Purposes

ADVANCING DEVELOPMENT OF THERAPEUTICS FOR SMA
$1,504,350 6 grants
ADVANCING DEVELOPMENT OF THERAPEUTICS FOR SMA.
$711,307 5 grants
MODAILTY-AGNOSTIC DRUG PROTOTYPING RESEARCH PROJECTS
$653,689 1 grant
EXAMINATION OF NEUROMUSCULAR JUNCTIONS IN SMA MICE
$619,062 2 grants
GENERATION OF SPINAL CORD MOTOR NEURONS FROM PLURIPOTENT CELLS
$345,000 2 grants

Financial Trends

Year Revenue Expenses Assets
2024 $19.5M $4.7M $50.2M
2023 $12.5M $3.6M $33.7M
2022 $25.4M $4.0M $24.1M
2020 $3.4M $2.6M $3.6M
2019 $193K $1.4M $1.5M

Between 2019 and 2024, reported annual revenue grew from $193K to $19.5M (+10021%), with total assets most recently reported at $50.2M.

Interactive year-over-year charts and full filing details available with membership.

Grant Geography

Grants from this foundation were reported to recipients in CA, FL, IL, MA, MD, NY, and 1 other state.

CAFLILMAMDNYPA

Full geographic grant map with state-by-state breakdown available with membership.

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